“Everyone on the Young Professionals Board (YPB) has that fire to raise awareness for Pancreatic Cancer because we’ve all been impacted by it.”
“My dad never wanted to make his battle with pancreatic cancer about himself. He believed in the power of sharing stories, and was all about helping others. Giving back is our family’s way to honor him and keep his legacy alive.”
“The funds from Rolfe are incredibly helpful because they let us take this information that we’re building for other purposes and be able to apply it to early detection research.”
“The ultimate reason why I joined Rolfe, besides their mission and the patient care support that they offer, is the people. I wish that no one experienced pancreatic cancer, but that’s not the reality, and the only good that has come of this is that we’ve all found each other.”
“Rolfe Foundation is our extended family, filled with people willing to do anything to help us, from connecting us with doctors to finding others who had similar experiences. Rolfe makes us feel like we are not alone. We believe in hope. We believe in Rolfe.”
While there are professionals who can be hired as in-home caregivers (nurses, home health aides, hospice physicians), often it is a spouse, partner, child, close friend, or family member who leads the care. Playing the role of caregiver is a challenge unto itself, and can be a serious, all-encompassing commitment. It is something that few people can do alone.
Caregivers need help, too. It is a simple fact that providing regular, often round-the-clock care to patients who are going through serious illnesses is a group effort. As a caretaker, while you may be the leader of that team, it is vital that you enlist others to help carry the load. Most caregivers need to balance the demands of their professional lives with the urgency of their loved ones’ medical needs. While many employers are more than understanding during such trying times, the Family and Medical leave Act (FMLA) permits eligible employees take up to 12 weeks of unpaid, job-protected leave during a 12 month period for specified medical reasons, which includes caring for a spouse, parent or child.
Caregiving can be as physically taxing as it is emotionally draining. As a caregiver, you need to beware of fatigue, and ensure that you find time to give yourself adequate rest. It is easy for caregivers to ignore their own physical and mental health while they prioritize the needs of their loved ones; in such moments, it is useful for caregivers to remind themselves that they will be of greater assistance the stronger and more rested they are.
Caregivers need support systems of their own. To avoid feelings of burnout, make sure to check in regularly with an intimate confidant outside of the medical process you are going through, someone who can help you maintain your own well-being. There are also support groups and systems that exist specifically for caregivers.